Here you'll find resources to help you heal, function, and build a life you really LOVE. It is possible, especially if you have help! Click the link below for interviews and other resources and scroll down for more!
Here is a list of organizations to reach out to for Chronic Illness Support and Rare Disease Support. If you have others that should be added to the list please let us know!
Click the link below for Vasculitis Specific Resources Worldwide
EMPOWERING people with chronic illness, rare disease, and Vasculitis to take control of their care and take back their lives. CLICK HERE
CCI promotes well-being and decreases isolation for those impacted by chronic illness, rare disease and vasculitis through chronic illness support and education. CLICK HERE
This will be an online support group for adults age 21 and older, who are impacted by the wide spectrum of challenges caused by chronic illness(es) (disease(s), rare disease, vasculitis or medical condition(s)) no matter what stage you are in (e.g., newly diagnosed, ongoing). CLICK HERE
Online men’s chronic illness support group with many other smaller groups, including support groups for men living with chronic illnesses and rare diseases. CLICK HERE
A program of the U.S. Pain Foundation, Pain Connection is dedicated to empowering people with chronic pain to improve their quality of life, decrease their sense of isolation, and take a more active role in their treatment. CLICK HERE
A free social network that makes it easy for you to: get the emotional support you need from others like you with rare diseases, vasculitis and other chronic illness support, and gain practical advice and insights on managing treatments or therapies CLICK HERE
A fellowship of men and women who share their experience, strength, and hope with each other so that they may solve their common problem and help others recover from the disabling effects of chronic pain and chronic illness. CLICK HERE
To facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain. CLICK HERE
Our vision is to provide patients and caregivers with a unique model of support for life with health-related uncertainty. CLICK HERE
We were created to empower our members, their families and the community by providing education, support and encouragement for those living with these and other related chronic conditions. CLICK HERE
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