Below you will find a list of vasculitis resources categorized by country. If there is a chronic illness resource that is missing, please email us so it can be added!
These chronic illness and Vasculitis groups help in many countries
An integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research in different forms of vasculitis. It is their goal to improve the care of patients with vasculitis through chronic illness resources. CLICK HERE
The goal of the Vasculitis Translational Research Program (VTRP) is to discover factors that cause vasculitis and to develop novel ways for physicians to diagnose and monitor these diseases more effectively. CLICK HERE
Our goal is to act as an international platform that links all efforts of cryoglobulinemia research, awareness, patient support, and education. CLICK HERE
It is our ultimate goal to utilize every means and opportunity to dramatically improve the lives of those living with this painful and debilitating disorder. CLICK HERE
Our mission is “to encourage and support international collaboration between vasculitis patient advocacy groups (VPAGs)” CLICK HERE
They strive to be at the forefront of Kawasaki disease issues by uniting the personal insight of families with the expertise of medical professionals. CLICK HERE
To support, educate and empower the Behect's Community, while advocating for better research, diagnostics, treatment, and a cure. CLICK HERE
To support those suffering from vasculitis diseases and their families by providing information and advice. CLICK HERE
We were set up to support people in the Yorkshire regions who live with the rare autoimmune disease Vasculitis. We run patient support groups regularly throughout the Yorkshire counties. CLICK HERE
These are very upbeat get-togethers and fellow ‘vascies’ often become firm friends from Cornwall and Devon to Somerset and Dorset. CLICK HERE
A charity committed to providing support for people affected by Vasculitis. Since 2010, sustainable support services and educational initiatives, progressive campaigns, and high-profile events have made LCTF a driving force for the vasculitis community in Scotland and the UK. CLICK HERE
We are a voluntary group of people living with, or affected by Vasculitis. To date we have relied completely on fundraising ventures by our members. CLICK HERE
Vasculitis Scotland is a new initiative, funded and managed by The Lauren Currie Twilight Foundation that focuses on the patients and carers living in Scotland. CLICK HERE
Behçet’s UK represents all Behçet’s patients in the UK including those yet to be diagnosed. We strive to secure the best care for all Behçet’s patients and assist their carers, parents, and relatives. CLICK HERE
The European Vasculitis Society (EUVAS) was founded with the objective of uniting vasculitis researchers and clinicians, promoting the study and treatment of vasculitis. CLICK HERE
My aim is to educate people about vasculitis, so that one day in the future if somebody says “I have been diagnosed with vasculitis” people simply know what the patient is talking about. CLICK HERE
A network of scientists and clinicians from European EGPA referral centers, gathering clinical and scientific excellence and expertise to promote collaborative clinical and translational studies, to enhance knowledge about the disease, and to develop new recommendations about its diagnosis and treatment. CLICK HERE
The France Vasculites association is managed and supervised 100% on a voluntary basis by patients and relatives of patients affected by vasculitis. CLICK HERE
A charitable organisation built by physicians, scientists, and communities that focuses on research, education, and clinical practices in vasculitis. CLICK HERE
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